The ME / CFS Stichting Nederland is committed to strengthening the position of patients with ME / CFS (chronic fatigue syndrome). We focus on ALL ME / CFS patients. Regardless of the severity of their ...
5 volunteers answer ME / CFS phone line
You speak to people with ME / CFS (chronic fatigue syndrome) by phone with their questions and concerns and offer them a listening ear.
You answer questions by telephone and provide information, arrange peer contact for ME / CFS patients. It is mostly about offering a listening ear and attention to people.
Everything can be done from home. We forward the phone so that your own phone is not known.
Working hours: 10 am-12.30pm available by phone one half day per week.
Special Conditions: Telephone line is transferred to your home address, so you can answer the telephone line from home. Easily without travel time.
We think it is important that you are customer-friendly and can listen well and have a good telephone voice. Preferably you are already experienced in the field of ME / CFS, for example because you have the disease yourself or are caring for someone with ME / CFS. But if not, we'll help you with this.
Induction method and guidance: A meeting takes place beforehand with other volunteers who serve the ME / CFS line on another day.
We do this by:
- Aiming for broad recognition and recognition of ME / CFS as a very serious disabling physical disease
- offering (a platform for) contact with fellow sufferers
- Contribute with progress towards the cure of ME / CFS
- as a knowledge center for ME / CFS to contribute to the sharing of information, knowledge and experience
- contribute from our network to scientific research aimed at the cure of ME / CFS.
For this we focus on ME / CFS patients, their family members and relatives, healthcare professionals and policymakers. We continuously work to achieve our goals with dedication, independence, integrity and an open attitude. We have an inclusive, positive basic attitude. We look at what can still be done and what can be improved. We are optimistic and enjoy our work. Our bottle is always half full and never half empty.
Representing interests, offering fellow sufferers contact and providing information