The ME / CFS Stichting Nederland is committed to strengthening the position of patients with ME / CFS (chronic fatigue syndrome). We focus on ALL ME / CFS patients. Regardless of the severity of their ...
Social Media freaks (met name jongeren!)
You independently post attractive content, respond to comments and answer questions on our socials.
Social media is our most important communication channel. These require a lot of maintenance. If several people keep track of these on a daily basis, it is doable. In mutual consultation, a monthly publication plan for each medium is drawn up and prepared and supplemented by current events in the meantime. You proactively provide content together. Request information from the other volunteers and the office and publish it. In addition, you look for attractive pieces yourself or make them yourself so that all media look neat and up-to-date. All this based on the style of the relevant social medium and the intended target group.
Not everyone has to do everything and one medium appeals to some more than others. If you have nothing to do with Linkedin, for example, you specialize on Facebook or Instagram.
It is especially important to us that our volunteers are happy to work “for a good cause”. Together we make a difference for people with ME / CFS, and that's what it's all about! Will you come and help us? Click on register and send us your message.
We do this by:
- Aiming for broad recognition and recognition of ME / CFS as a very serious disabling physical disease
- offering (a platform for) contact with fellow sufferers
- Contribute with progress towards the cure of ME / CFS
- as a knowledge center for ME / CFS to contribute to the sharing of information, knowledge and experience
- contribute from our network to scientific research aimed at the cure of ME / CFS.
For this we focus on ME / CFS patients, their family members and relatives, healthcare professionals and policymakers. We continuously work to achieve our goals with dedication, independence, integrity and an open attitude. We have an inclusive, positive basic attitude. We look at what can still be done and what can be improved. We are optimistic and enjoy our work. Our bottle is always half full and never half empty.
Representing interests, offering fellow sufferers contact and providing information